Neurodata Protection in Chile
The NeuroRights Initiative is working with the Senate of the Republic of Chile, the Chilean Minister of Science, and the Catholic University (Pontificia Universidad Católica: PUC) to pioneer a NeuroData protection agenda. These efforts are coordinated by the Commission of the Future of the Senate, an office led by Senator Guido Girardi. This commision introduces legislation that address advances in medicine and science.
Actions in Chile
An amendment to article 19 of the Chilean Constitution is being introduced to Parliament. It defines mental identity as a basic right, which can only be altered in accordance to future laws.
A new bill (“Proyecto de Ley”) on NeuroProtection is being introduced to Parliament. It provides the first legal definitions of Neurotechnology, Brain Computer Interfaces and NeuroRights. It defines all data obtained from the brain as “NeuroData” and applies to them the existing legislation on organ donations, outlawing the commerce of NeuroData. It also applies medical legislation to the future use and development of Neurotechnology.
A deontological set of ethical guidelines is being drafted by a group at the Catholic University for the computer, AI and neuroengineering industries. The Catholic University is studying instituting this code into their Engineering School curriculum at the undergraduate and graduate level.
A vigorous outreach campaign has taken place in the media, universities, private sector and governmental organizations. This culminated with a meeting on October 3rd, 2019 at the Presidential Palace between Science Minister Couve, President Piñera, Professor Yuste, and Senator Giradi, where the Chilean Government agreed to provide official backing for the NeuroProtection agenda.